| 剧情简介 | Across the globe, there are 5 – 10k people living with Pompe disease, a rare genetic disease. Each have their very own invaluable experiences and wisdom that can be just what other people living with Pompe need to hear. Sanofi Genzyme in collaboration with patient advocacy groups, gathered these insights with a survey of a large cross-section of the Pompe community in countries like South Korea, Japan, Columbia and the US. We captured first-hand their words of mental and emotional resilience, and how they face the challenges of their condition. |